The 11th revision of the International Classification of Diseases and Related Health Problems (ICD-11) aims at improving the lives of persons with the lived experience of chronic pain by providing clearly defined and clinically useful diagnoses that can reduce stigma, facilitate communication, and improve access to pain management, among others. The aim of this study was to assess the perspective of people with chronic pain on these diagnoses. An international web-based survey was distributed among persons with the lived experience of chronic pain. After having seen an information video, participants rated the diagnoses on 8 endorsement scales (eg, diagnostic fit, stigma) that ranged from -5 to +5 with 0 representing the neutral point of no expected change. Overall ratings and differences between participants with chronic primary pain (CPP) and chronic secondary pain (CSP) were analyzed. N = 690 participants were included in the data analysis. The ratings on all endorsement scales were significantly higher than the neutral point of 0. The highest ratings were obtained for "openness" (2.95 ± 1.93) and "overall opinion" (1.87 ± 1.98). Participants with CPP and CSP did not differ in their ratings; however, those with CSP indicated an improved diagnostic fit of the new diagnoses, whereas participants with CPP rated the diagnostic fit of the new diagnoses similar to the fit of their current diagnoses. These results show that persons with the lived experience of chronic pain accept and endorse the new diagnoses. This endorsement is an important indicator of the diagnoses' clinical utility and can contribute to implementation and advocacy.

中文翻译：

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患者对国际疾病分类第 11 次修订版 (ICD-11) 中慢性疼痛分类的看法：来自国际网络调查的结果。

国际疾病和相关健康问题分类 (ICD-11) 第 11 次修订旨在通过提供明确定义和临床上有用的诊断来改善有慢性疼痛经历的人的生活，这些诊断可以减少耻辱感、促进沟通并改善生活质量。获得疼痛管理等。本研究的目的是评估慢性疼痛患者对这些诊断的看法。一项基于网络的国际调查在有慢性疼痛生活经历的人中进行了分发。观看信息视频后，参与者对 8 个认可量表（例如，诊断适合度、耻辱感）对诊断进行评分，范围从 -5 到 +5，其中 0 代表没有预期变化的中性点。分析了慢性原发性疼痛（CPP）和慢性继发性疼痛（CSP）参与者的总体评分和差异。 N = 690 名参与者参与了数据分析。所有认可量表的评分均显着高于中性点0。最高评分为“开放性”（2.95±1.93）和“总体意见”（1.87±1.98）。 CPP 和 CSP 参与者的评分没有差异；然而，患有 CSP 的参与者表示新诊断的诊断适合度有所提高，而患有 CPP 的参与者则认为新诊断的诊断适合度与当前诊断的适合度相似。这些结果表明，有慢性疼痛生活经历的人接受并认可新的诊断。这种认可是诊断临床效用的重要指标，有助于实施和宣传。