Background and Hypothesis Cognitive health in schizophrenia spectrum psychosis has received substantial empirical attention in recent decades, coinciding with the development and implementation of interventions including cognitive remediation. Subjective experience in psychosis, including qualitative explorations of service user perspectives, has also proliferated; however, there is no available synthesis of service user representation in the psychosis cognitive health literature. This scoping review investigated prevalence and characteristics of qualitative research reporting service user perspectives across the extant research on cognitive health and related interventions in psychosis. Study Design We conducted a literature search on qualitative methods in cognitive health and/or related interventions across PubMed, Web of Science, and PsycInfo databases. The review followed the PRISMA-ScR guidelines for scoping reviews and identified 23 papers. Data extraction included study design and sample characteristics, qualitative methodology, and reporting. Study Results Of 23 articles, 18 reported on user experiences of interventions, most often in the context of feasibility/acceptability for otherwise quantitative trials. Five studies described service user experiences of cognitive health separately from interventions. Only 3 included any service user involvement or participatory methods. Twenty articles reported any demographic characteristics, and fewer than half (11) reported any racial or ethnic sample characteristics. There was substantial variability in qualitative methodology and reporting across studies. Conclusions Qualitative methodology is lacking in its representation and rigor across the cognitive health literature for schizophrenia spectrum psychosis. Additional inclusion of service user lived experience is critical for future research to better characterize cognitive health and inform interventions to promote recovery.

中文翻译：

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认知健康和精神病相关干预措施定性研究中的服务用户代表：范围界定审查

背景和假设 近几十年来，精神分裂症谱系精神病的认知健康受到了大量实证关注，这与包括认知矫正在内的干预措施的发展和实施相一致。精神病的主观体验，包括对服务使用者观点的定性探索，也激增；然而，精神病认知健康文献中没有可用的服务用户代表性综合。这项范围审查调查了现有的认知健康和精神病相关干预研究中定性研究报告服务用户观点的普遍性和特征。研究设计 我们对 PubMed、Web of Science 和 PsycInfo 数据库中认知健康和/或相关干预措施的定性方法进行了文献检索。该审查遵循 PRISMA-ScR 范围审查指南，并确定了 23 篇论文。数据提取包括研究设计和样本特征、定性方法和报告。研究结果 在 23 篇文章中，有 18 篇报告了干预措施的用户体验，最常见的是其他定量试验的可行性/可接受性。五项研究描述了与干预措施分开的服务用户的认知健康体验。只有 3 个包括任何服务用户参与或参与方法。二十篇文章报告了任何人口统计特征，不到一半 (11) 报告了任何种族或民族样本特征。不同研究的定性方法和报告存在很大差异。结论 在精神分裂症谱系精神病的认知健康文献中，定性方法缺乏代表性和严谨性。进一步纳入服务使用者的生活经历对于未来的研究至关重要，以更好地描述认知健康状况并为促进康复的干预措施提供信息。